BTS encourages all those with an interest in Interstitial Lung Disease to read this report, which is designed to support hospitals in gaining actionable insights into key drivers for improved patient outcomes.
The report highlights a number of important activities, including;
- 11 new research publications/abstracts using registry data
- 3 successful research applications to access the data
- Over 2000 new cases added to the registry
The UK ILD Registry is a clinical database which was established in February 2013. The vision of the Registry is ‘Using data to support better lung health for all with ILD’, and research is vital to improve patient care and outcomes.
Dr Nazia Chaudhuri, Chair of the BTS ILD Registry, says,
“We are entering a new era regarding ILD data - as the Registry programme comes to an end we are hoping for the adoption of a national audit programme for ILD by NRAP which will facilitate the continued understanding of ILD epidemiology and service provision in the UK.
This report highlights our translation from delivery to demonstrating impact. These include the ongoing project exploring fibrotic hypersensitivity pneumonitis and numerous international publications and presentations by researchers asking important research question using the BTS UK ILD Registry data.
We would like to thank all the multidisciplinary teams who have contributed to the success of the Registry over the last decade.”
The Registry will continue to run until the end of June 2026. Registry data, presented in the report, along with data gathered since 2013, will remain available to researchers via the BTS data request process.
London, London WC1N 2PL
25/06/2026 10:14:55
British Thoracic Society
