01:46:21	Nicola Roberts:	Has anyone asked patients about whether they would like to do joint rehab with other conditions?
01:46:54	hayley wellerd:	good morning. I was hoping to know of there are any OT's on the course today? Im an OT and wanting to network with other OT's :)
01:48:48	PRITCHARD Annelie:	We utilise youtube educational videos as an alternative education provision while we have been addressing our waiting list - this could be a way of tailoring education. So multi-morbid groups exercise together but are given different education.
01:54:46	Claire Nolan:	Here is the link to the most recent paper looking at the MID of ISW: https://thorax.bmj.com/content/74/10/994.abstract
03:51:17	Julie Tollit:	Hi, we've seen an increase in uptake and completion since COVID.
03:52:24	Hayley Williamson:	we have definitely noticed a bigger DNA rate post covid despite sending letters in a timely manner and calling patients 48 hours prior to their appointments. Also its worth sayin Our referral rate has increased post covid.
03:52:52	Craig Ord:	Hi, we've seen a reduction in referrals since COVID. We're working with GPs to educate around the benefits of pulmonary rehab and we're developing an E-referral so its easier to refer
03:53:21	Kate Plunkett:	We discussed in our group this morning that a lot of patients are fearful of attending group sessions but once they are reassured and attend 1 session this can improve. We haven't seen an increase in drop-outs
03:53:34	Hannah Wilson:	We do motivational interviews prior to initial assessment for PR, asking about their motivation (out of 10) for attending for the full programme and their confidence (out of 10) for the full programme. We have a generally good completion rate (other than illness)
03:54:11	PRITCHARD Annelie:	Our referral rates have soared in recent months as GPs are completing annual COPD reviews again and can feel blindly referring to PR to meet their QoF targets, so quality of referrals has dropped
03:56:01	Hetal Sodha:	our referrals have been high (however not always appropriate and do not always fit the criterias for PR). We have had to try triage referrals better and a different way. But generally still have high DNA to assesments and also high drop out rates for various reasons.
03:58:24	Julie Tollit:	As we use ISWT and ESWT for PR this allows us to blanket test all PR patients for AOT requirements.
04:01:19	Julie Tollit:	We are getting terrible referrals now PR is a QoF, quality has definately dropped. Alot of patient havent even been asked just referred as they have  a lung condition
04:02:52	Nicole Challacombe:	Same Julie, my first question is always do you know why you're here and so many have no idea and have just been routinely referred and it was never even mentioned let alone discussed in any detail
04:03:32	Julie Tollit:	you are so right Nicole
05:42:35	Theresa Hamer:	You referred to a slide pack. Will we be emailed the slides from each of the sessions?
05:42:51	Rachel Garrod:	Shameless promotion but relevant to Louise´s great talk: A recent book I wrote with a patient was awarded Times Top 3 Self Help COPD manual - here is a link to it - reviws https://www.abebooks.com/9781733012928/SECRET-THRIVING-COPD-UNIQUE-PERSONAL-1733012923/plp
05:47:10	Julie Pentony:	a patient may say they don't have their glasses with them, ask for support to complete a questionnaire
05:53:03	hayley wellerd:	it would be a real challenge to adapt patient education to match all abilities in group education sessions pitched too low or high for some patients means they might disengage.
05:54:19	Kate Geofferson:	it is probably the largest mixed ability audience anyone would ever teach to
06:04:55	Julie Tollit:	we have issues with the communication dept delining to pat for leaflets, esp coloured , as they want us to stop giving them out and to go 'paper free'. :-(
06:05:33	Julie Tollit:	opps that wa smeant to ready pay for leaflets, not pat, printing costs
06:08:49	Helen Jefford:	We should all be using the BLF info leaflets??- i.e the copd self mx plans -national info from the biggest resp organisation in the country standardised and peer reviewed literature. but it is not ideal. it is not easy reading, not available in every language. should we not be working alongside them to support a national roll out to meet all needs, address these challenges?
06:09:32	Jacqui:	BLF have stopped yu buying their exercise books
06:09:33	hayley wellerd:	Does ant one have any self efficacy measurements?
07:22:33	Theresa Hamer:	Copied from Rachel's post
07:22:37	Theresa Hamer:	Shameless promotion but relevant to Louise´s great talk: A recent book I wrote with a patient was awarded Times Top 3 Self Help COPD manual - here is a link to it - reviws https://www.abebooks.com/9781733012928/SECRET-THRIVING-COPD-UNIQUE-PERSONAL-1733012923/plp
07:23:16	Lee Jemma:	Could anyone share a link to their Youtube education videos?
07:24:04	Alex Colloby:	https://www.bhamcommunity.nhs.uk/patients-public/adults/respiratory-services/pulmonary-rehabilitation/resource-bank/
07:24:11	Theresa Hamer:	COPD and other health information for patients in a number of languages
07:24:13	Theresa Hamer:	https://europeanlung.org/en/information-hub/factsheets/
07:25:04	Rachel Williams:	We did some PPV engagement around education and our patients wanted to be able to recognise the faces delivering the information locally so we are developing our own library
07:25:06	Ruth Griffith:	We put a PR booklet to geather with all the medical professionals that did the educational sessions before covid and talk presentations for the patients.
07:25:41	PRITCHARD Annelie:	this is the link to our YouTube videos.. https://www.youtube.com/playlist?list=PLTi4UC1v5J_m3RknV1LCM0UYlI-1b9f8N
07:26:52	hayley wellerd:	What is PPV?
07:27:58	Helen Jefford:	its PPV- patient public voice
07:36:44	Naomi McKnight:	It depends on the local commissioning agreement
07:37:00	Naomi McKnight:	we have two years, most other areas have one year before they can do the programme again
07:37:04	Kelly Younger:	We are yearly as part of our service
07:39:15	Catriona Boyd:	Physical Activity Referral Scheme ( PARS) 12 week free gym programme run through local council run leisure centres. but generally a year unless marked deterioration/ increased exacerbations
07:39:59	Kate Geofferson:	we would also see them earlier if going for LVRS/EBVS
07:41:15	Naomi McKnight:	Sensitivity and allowing for all different feelings about end of life care and conversations, set framework of suggesting all have different take on this subject
07:41:42	Kelly Younger:	Does anyone give pre warning to patients that this talk is coming? We have in the past and had a mixed response.
07:42:02	Naomi McKnight:	better face to face when you know the group well
07:42:04	PRITCHARD Annelie:	We've had feedback from patients who have been signposted to online resources about ILD who don't like reading about prognosis (such as NHS website resources)
07:42:04	Julie Pentony:	we briefly hand out BLF planning for the final stages booklet and advise people to think about making preparations, we link this with other topics
07:42:41	Natalie Roberts:	tried pre warning  once and half the class arrived an hour late that day
07:43:08	Theresa Hamer:	I tend to have those discussions on a 1:1 basis. Always a mixed response to the topic as some people more pragmatic about EoL discussions and want to talk about the subject, whereas others immediately close the conversation down
07:43:36	Kate Geofferson:	i'm still unsure as the main ethos of PR is positivity and improving future QOL
07:45:04	Julie Tollit:	we give diferent handouts to each patient dependent on disease
07:45:13	PRITCHARD Annelie:	We initially offer email links/online resources but have written literature for those not IT savvy
07:45:29	Naomi McKnight:	Our ILD users don't mind us talking a bit about copd and often contribute and then don't take the leaflets with them
07:45:46	Catriona Boyd:	we have a digital library developed during COVID that was emailed to patients taking part in virtual rehab.
07:45:59	PRITCHARD Annelie:	Google translate can be hit and miss on accuracy..just a warning
07:46:18	Lina Andersson:	Was just going to say that Annelie :)
07:47:02	PRITCHARD Annelie:	We just enrol them in standard PR cohorts
07:47:12	Julie Tollit:	we dont alter PR for pre surgery, these patients are included in the general pR grp
07:47:34	Sally Marshall:	We enrol them in standard PR
07:47:37	Naomi McKnight:	They come into our standard course
07:48:02	Bev Quarton:	CHange formats of education 10-15mins
07:48:13	Naomi McKnight:	More interaction with different faces in education
07:48:16	Lina Andersson:	Will implement use of knowledge questionnaire (at some point)
07:48:18	Dermot Bellew:	Check reading age of our published materal
07:48:18	PRITCHARD Annelie:	check accessibility/reading age of all information given
07:48:19	Sue:	New ways of education delivery
07:48:20	Julie Tollit:	lieracy testing the handouts
07:48:20	Craig Ord:	COPD Link Questionnaire to measure patient knowledge of condition
07:48:22	Kate Pinckney:	I now have way too much to do to change/alter some of our education delivery
07:48:22	Daniel Neilson:	Handing out education prior to session, dropping education down to 10-15 minutes
07:48:23	Sally Marshall:	To think again about how we are evaluating our education service
07:48:26	Doreen Berry:	Linq - evaluate education and way delivered
07:48:28	Jarvis Kenman:	use more scenarios and stories in our education sessions
07:48:28	Natalie Roberts:	Breaking up our education sessions more proactively
07:48:29	Nicole Challacombe:	Include case studies / quizzes in education sessions and alter how it's being presented every 15 minutes
07:48:30	Theresa Hamer:	Use of LINQ or similar
07:48:32	Kate Plunkett:	Introduce more variety to sessions
07:48:37	Rashmi Gadam:	Use BKCOPD questionnaire more regualrly
07:48:40	rachelduke:	Give patients evaluation forms post each education sessions rather than at the end of the programme
07:48:40	Izzie Amey:	to use the function in word to check readability of our materials
07:48:42	Shabana Younis:	Ensure literacy is formally assessed and actioned
07:48:43	hayley wellerd:	Learning from today; how diverse some of the PR services are.
07:48:47	Julie Pentony:	evaluate education pre and post PR, offer different types of resources, use linQ and change mix our sessions rather than just talks
07:48:49	Catriona Boyd:	looking at using LINQ etc to evaluate education
07:48:56	Debbie McFaulds:	introducing the linq questionnaires
07:48:57	Kelly Younger:	evaluate all patient facing literature to ensure it suits the audience
07:49:00	Chukwuemeka Nnuji:	modify education session to 15 - 20 mins
07:49:04	Helen van Uem:	evaluating education, getting classes up and running fully again