The BTS Orphan/Rare Lung Disease Specialist Advisory Group, chaired by Dr Howard Branley, advises BTS on issues related to rare lung diseases.

The BOLD Register

BTS established The British Orphan (or rare) Lung Disease Register (BOLD) in January 2000 with the aim of facilitating research into rare lung diseases, improving clinicians' knowledge of rare lung diseases, and to help patients establish self help groups. 

The BOLD project ran for 3 years from January 2001- December 2003 using a monthly reporting card which was mailed to all BTS consultant clinician members to allow regular reporting of 11 rare lung diseases.  From 2004 to 2008 the BOLD register collected a limited amount of data via an electronic reporting system.

Data collection for the BOLD register is now on hold pending a review of the area by the BTS Trustees and the Specialist Advisory Group.  Any queries should be sent to: bold@brit-thoracic.org.uk
  

Education

March 2009